by John Glynn | Feb 24, 2024
My son Raheem Jason was diagnosed with Ependymoma on 20th December 2023. Raheem is a very happy, energetic, kind and healthy child prior to Raheems diagnosis, over the course of 4 weeks, I was noticing Raheem was getting ill (cold, flu, cough) more regularly than a...
by John Glynn | Jan 27, 2024
When I was 11 my parents noticed that I would watch TV in an unusual way, I would cock my head to the side and squint to get a better view. This was worse when playing video games. I also developed fatigue, and extreme thirst and remember running to the toilet...
by John Glynn | Jan 14, 2024
Please read the below story about Cadhla who we are helping. Thank you to Pam (Cadhla mum) who also had RB as a child and lost her own sight for sharing their story. Cadhla was diagnosed with Retinoblastoma when she was 10 weeks old. She was being checked as a...
by John Glynn | Dec 16, 2023
In 2014, our daughter Caroline, then aged almost 5 years old, was diagnosed with an inoperable brain tumour in Waterford Regional Hospital. She was rushed to Temple Street Children’s Hospital and a week or so later, she underwent several operations to have...
by John Glynn | Nov 9, 2023
This is Alex, our beautiful, funny, mischievous four year old little boy. He loves horses and dreams of being a jockey when he grows up. A dream I have no doubt he will achieve as he is such a strong determined little boy. He blows us away each day with the courage he...
