The Gavin Glynn Foundation along with many parent/patient groups across Europe are actively campaigning for changes to the European Paediatric Regulation. For more information on Unite2Cure use this link to go to the Unite2Cure website.
PanCare is a multidisciplinary pan‐European network of professionals, survivors and their families that aims to reduce the frequency, severity and impact of late side‐effects of the treatment of children and adolescents with cancer. Most European countries are represented. PanCare is working to achieve equity of access to care for childhood cancer survivors across Europe, to perform collaborative research and to act as a resource of research based information concerning all late side‐effects of cancer treatment. An important aim of PanCare is to work with the European Community to increase awareness and research about childhood cancer survivors. The long‐term strategic aim of PanCare is to ensure that every European survivor of childhood and adolescent cancer receives optimal long‐term care.